Okay so the uncertainty is just how far I'll recover - y'all best hope it's all the way cause I plan to drive my car again!
If anything, just so I can do one of my favorite solo outings, like taking my e reader to an Indian buffet.
On the medication front I'm down to 1 steroid a day and that's great - ki stopped the zombyfying seizure pills cause I wasn't showing signs of seizure and the meds were leaving me in a really bad state, and I really needed to feel mildly better, not like my future was going to be dominated by this awful haze. I only remember taking them a couple of times, and then just setting them aside, but he says I took them for 5 days in a row. The nurse practitioner we met with said Dr Curti advised we keep taking them just in case but since Dr Ki was there and was the one who decided I should stop, she totally agreed and wrote a script for some Trazedone at our request to help me sleep better (my sleep has been sporadic at best) which I really think is funny as I'm taking half the anti depressant dose for the good sleep side effect.
Tips for sleep aids when you're a big n tall person :
Space the pills out rather than taking them all at once. That way you don't wake up 2 hrs later shock awake and super angry cause you know you were finally sleeping and you also know you won't sleep again that night. I can't emphasize this approach enough... Oh it stinks to realize you finally slept and then be shock awake again!
Oh and with less steroid intake, my body is taking over with adrenaline production and I'm working a lot to get my left coordination back (it's pretty bad right now) and we're doing a few practice walks each day.
It's amazing to have Ki here helping me learn to do things like walk safely - he knows how to provide support physically without doing the walking for me. It's so weird to not be able to walk on my own and such.- I'm kinda terrified that I won't be able to play music at the same level with my left hand... But I'm playing wii lego Star Wars which is helping and plan to see what i can do with an acoustic guitar today - freakin weak left hand, at least I can hold a cereal bowl!
You know this is such uncertain territory and in the last 3 weeks I've received the sad news that other friends of mine passed from their cancers, so I know I have some luck to still be here, and hopefully my progress will go beyond just being self sufficient in acquiring my breakfast needs, but will include traveling. At least I can speak again... Well that's a perk in my book if not in many others' right?
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