Home front at last.
It took a while longer than I had hoped to ween me off the Neo and to have my heart working 100% on it's own. I've been sleeping a lot, passing a lot of fluids and trying to get my appetite back (doing well enough on the fluids... not perfect on the appetite yet).
There has been a large amount of itchy peeling skin on my face and scalp. We've been rubbing in an Aveno oatmeal creme all over my head to mellow the sensation. I expect to be able to sleep better tonight thanks to Ki taking care of me :)
My hands are already starting to return to a more normal size, but my legs and feet are still hyper puffy. I've decided to call this the turtle effect. Scales, floppy paws and such. It should become normal after 3 days of water pills.
From what I've been told the taste buds take a little bit of time to come back to normal, so certain things taste absolutely amazing (chilled fruit smoothies and mildly sweet cold drinks) and the 5 spoonfuls of mashed potatoes were divine! Much thanks to our friends for providing some food - it's very helpful that Ki doesn't have to do everything so he doesn't feel overwhelmed.
I'm sure once my stomach and digestion are back on track I'll be totally wanting to eat, but hopefully I'll drop some lbs between now and 2 Mondays from now. The dosage they push into you for IL2 is completely weight dependent rather than a combination of your weight and your skin's total size (at least for high dosage IL2).
So here's to dreams of milkshakes and hamburgers lol :)
How about dreams of roasted cauliflower soup and fresh juiced carrot and apple juice? :) Cause that's what I'm bringin'.
ReplyDeleteDoss, youre a great writer! Im very entertained and can't wait to share this with Natalie tonight. I love the comments about your Dad. I loved him:)You sound amazing and I am so confident that you and Ki are going to get through this. All for now and all my love to you and your family.
ReplyDeletewendy
Doss...you sound like you're coming around to feeling like your old self again. I've been thinking about you, sending good thoughts that this is all working for you.....holy shit...that's the loudest thunder i've heard in a while and the rain is really loud....sounds AMAZING!!
ReplyDeleteAnyway, hope you're recouping well, and if there's ever a MF pilgrimage to come see you, i'd love to.
-denise
Doss- we love you and are praying for you. Thank you for doing this blog. It's so nice to be able to check in on you.
ReplyDelete