Ive.been experiencing a combination what feell as if many past issues, just met a handful of newbies on Matchcom, happening over the last week. No shout outs to the dating site where the "founder" looks related to Don Knotts.
It's just not much fun, to figure out what to do, when it's not 100% easy to describe, or trying to describe accurately when my radiation brain automatically wants to swap "shingles" for "scabies" and Ki gives this look of horror, when the nurse or doc I'm sharing this new issue with' face turns white.
Related to this, I had a relatively easy bout of Shingles a couple of weeks ago, which we caught very early, and we're lucky to have isopropyl alcohol to start drying it up, and Dr Garly prescribed a twice a day, for two week dose of Valocyclovir which I now have to take daily until the Dr says it's done. The rash wasn't huge and the pretty pustules which were there have all disappeared. At least this was caught early and didn't hurt like a full born bloom of Shingles does. one bonus was I did get my own rooms when getting two fluid infusions, and in the Ambulatory Transfusion for bonus blood a couple of weeks back.
My next note-worthy update surrounds my meeting with one of the Good Samaritan Radiation-Oncologist (Dr Mary Austin Seymore) this was set up by Dr Garly, as I've been experiencing regular bouts of strong pain either in pokes or longer steady bouts varying from 4 - 8 on a scale of 1 - 10 . There is a good size tumor on my right adrenal gland near or partially touching my Kidney, and we decided it's painful enough to need some treatment. Of course being near a Kidney, enhances the possibility for complication, but it's hurting enough that I get to know a whole new staff.
I got a meeting set up with the Oncologist (Kim Mc Greggor,) who had been recommended at the hospital, and her staff had booked me for 8/10, but both Dr Austin Seymore, and the nurse I was working with in the blood transfusion group, had calls with her on Friday, and both mentioned my case and what a joy I must be to work with? 😊😁 and the appointment was able to happen a week earlier (of course I don't have the new date (Ki got it though,)
This Teusday I have my next dual treatment and hopefully we'll see some progress with both procedures. I am sad to be likely leaving Dr Garly's service, but as she won't be here as a locums doc, this will just be moving fwd a little quicker.
Much love to all still checking in on me. My fatigue has impacted how often I manage to update here, hoping that can improve!
