I'm up in Portland for my second infusion of Yervoy, and just was told my pathology tested positive for the c kit mutation. It's potentially good news as it means if the Yervoy doesn't slow the growth significantly or reduce the melanoma or get rid of it or make me finally manage to burp the alphabet non stop, then I can take a pill originally developed for Leukemia called Gleevec.
Nothing is a sure deal, but this really does mean I have very improved solid options for treatment, and it's been shown to work with melanoma that has this specific mutation. It's not really as cool as shooting lasers from my eyes or sprouting wings or even giving me the ability to change dirt to chocolate... But if it keeps me alive it's very welcome news!
I really needed to hear something good this week on the health front. The lengthy treatment time with Yervoy kind of snuck up on me earlier this week and I slipped and got a bit fearful. This should be super helpful and makes my outlook more based on actual medical results rather than completely self will focused.
In the meantime I have everything crossed to not need the stash of immodium To stave off side effects...
Thursday, August 18, 2011
Monday, August 15, 2011
Interesting Day
Sometimes a piece of music just rips you... Toad the Wet Sprocket's "I will not take these things for granted" might not have been the best choice to enjoy while finally getting photos from a trip to Japan cropped and processed to post.
Saved by some random Tori Amos - always helpful to listen to her and realize the music is incredible and that she's sharing all that craziness in her head in her lyrics :) Of her music I know, Scarlet's Walk (the entire album) never fails to bring a sense of wonder to me - even the songs that start a bit lamely just flow into amazing parts.
Probably should just put 24-7 spyz on and let that run my head in another direction.
To those here who were on the trip to Japan in May 2009 (I took too damn many photos... so it's taken a while... back off! lol), those will be posted on flickr soon. Learned a new trick in Photoshop to bring out details in pics when the weather and lighting wasn't cooperating that looks better than my pervious trick I think too. I have to say the memories from those pics really is uplifting.
Saved by some random Tori Amos - always helpful to listen to her and realize the music is incredible and that she's sharing all that craziness in her head in her lyrics :) Of her music I know, Scarlet's Walk (the entire album) never fails to bring a sense of wonder to me - even the songs that start a bit lamely just flow into amazing parts.
Probably should just put 24-7 spyz on and let that run my head in another direction.
To those here who were on the trip to Japan in May 2009 (I took too damn many photos... so it's taken a while... back off! lol), those will be posted on flickr soon. Learned a new trick in Photoshop to bring out details in pics when the weather and lighting wasn't cooperating that looks better than my pervious trick I think too. I have to say the memories from those pics really is uplifting.
Thursday, August 4, 2011
No new side effects yet
Just a quick update to report I haven't had any new fun side effects. Of course it's not really expected until after the second infusion which is 2 weeks away still, and even then the probability is low.
But for those keeping score my left heel decided it needed to peel off from the walking... Yay for a new layer of skin there! It's not really a surprise in hindsight, and just a tempoary setback on the walking program.
The increase in exercise comes at a good moment as Ki and I started having a homemade pizza night this last week... And you know nothing good comes from eating pizza dough, no matter how thin ya make it! Of course it's super cool to control what goes into the pizza and toppings and cheese... Not to mention it's way cheaper to eat amoeba shaped pizza completely made from scratch, and a bit more fun . Yay for learning to make pizza dough!
We also went to a play at the Oregon Shakespeare Festival courtesy of the Ob-gyn Ki worked with as her husband is playing in the pit for a production there. Yay for comp tickets to Loves Labors Lost!
But for those keeping score my left heel decided it needed to peel off from the walking... Yay for a new layer of skin there! It's not really a surprise in hindsight, and just a tempoary setback on the walking program.
The increase in exercise comes at a good moment as Ki and I started having a homemade pizza night this last week... And you know nothing good comes from eating pizza dough, no matter how thin ya make it! Of course it's super cool to control what goes into the pizza and toppings and cheese... Not to mention it's way cheaper to eat amoeba shaped pizza completely made from scratch, and a bit more fun . Yay for learning to make pizza dough!
We also went to a play at the Oregon Shakespeare Festival courtesy of the Ob-gyn Ki worked with as her husband is playing in the pit for a production there. Yay for comp tickets to Loves Labors Lost!
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